United by Long COVID
Members of Long COVID Europe
Long COVID Europe (LCE) is a European network of Long COVID patient associations run by Long COVID patients.
LCE was founded because many Long COVID patient organizations were struggling with the same issues. LCE creates economies of scale by sharing relevant resources, know-how, and contacts with its members.
Austria
Long COVID AustriaLong COVID Austria Long Covid Austria was founded at the end of January 2021. It quickly grew from a Facebook Patient Support Group into a Patient Advocacy Initiative, actively pushing the press to address the issue and increase visibility. We...
Belgium
Long COVID BelgiumPlease choose your region: Flanders WalloniaOther members of Long COVID Europe HungaryIrelandItalyScotlandSpain
Cyprus
Long COVID CyprusLong COVID Cyprus Long Covid Cyprus was formed under the Cyprus Federation of Patients’ Associations in April 2022 by patients suffering with long-term COVID19-related symptoms. Long Covid Cyprus currently has more than 500 members, an active online...
France
Long COVID FranceWebsiteapresj20.fr Support groupfacebook.com/ApresJ20 Twittertwitter.com/apresj20 Contactassociation@apresj20.frHighlights Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter....
Germany
Long COVID GermanyWebsitelongcoviddeutschland.org Support groupLong COVID Deutschland Selbsthilfegruppe Twittertwitter.com/longdeutschland Contactinfo@longcoviddeutschland.orgHighlights 1. Participation in public hearings of the Committee on Health in the German...
Greece
Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...
Long COVID Kids
Long COVID KidsLong COVID Kids Long Covid Kids is a UK-based, International charity representing and supporting children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them. We believe all children should...
Long COVID Physio
Long COVID PhysioLong COVID Physio Long COVID Physio is an international peer support, education and advocacy patient-led association of physiotherapists living with Long COVID and allies. We work internationally across advocacy, policy, guideline development and...
Netherlands
Long COVID NetherlandsWebsitehttps://longcovidnederland.wordpress.com/ Patient Support group Long COVID Nederland (PASC) - langdurige corona klachten | Facebook 1) The 6th of July we handed over our petition, signed by more than 12.000 people, to members of the Dutch...
Sweden
Long COVID SwedenWebsitehttps://longcovidsweden.wixsite.com/my-site-1 Facebook: www.facebook.com/groups/711295843056025/ https://www.facebook.com/groups/304035760933732?locale=sv_SE Contactlongcovidsweden@gmail.comHighlights In early 2020 we were hit by the first...
Switzerland
Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...
UK
Long COVID SupportLong COVID Support Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and...