Introduction to
Long COVID Europe

The Condition

What is Long COVID?

Long COVID is when, after a SARS-CoV-2 infection, symptoms persist for longer than 12 weeks. Long COVID is a highly debilitating, multi-system condition with fluctuating symptoms.

Who is Vulnerable to Long COVID?

There is no direct link between the severity of Long COVID and the severity of the initial infection. Though hospitalized patients run a greater risk, most Long COVID patients experienced mild (or even asymptomatic) initial infections.

The Organisation

What Are We?

Long COVID Europe (LCE) is a European network of Long COVID patient associations run by (current and former) Long COVID patients.

Why Do We Exist?

LCE was founded because many Long COVID patient organizations were struggling with the same issues. LCE creates economies of scale by sharing relevant resources, know-how, and contacts with its members.

What Do We Do?

Our Mission statement

  • We offer unique expertise as a patient network, helping third parties cover their patient-centric blind spots.
  • We gather information concerning Long COVID to curate and share with Long COVID stakeholders.

What Do We Hope to Achieve?

Our Vision statement

  • Recognition of Long COVID as an impactful pandemic within the COVID-19 pandemic that urgently needs to be addressed by governments and the healthcare sector, with physical causes, also affecting young people.
  • Research and knowledge distribution via extra funding for patient-centric Long COVID research in multi-disciplinary networks, with an urgent focus on trustworthy diagnostics and ways to eliminate hurdles for patient rehab.
  • Rehabilitation based on medical needs using a multi-disciplinary approach, freed from counterproductive administrative and financial hurdles, with sufficient support for those with little or no access to informal care.

United by Long COVID

Austria

Austria

Long COVID AustriaLong COVID Austria Long Covid Austria was founded at the end of January 2021. It quickly grew from a Facebook Patient Support Group into a Patient Advocacy Initiative, actively pushing the press to address the issue and increase visibility. We...

read more
Belgium

Belgium

Long COVID BelgiumPlease choose your region: Flanders WalloniaOther members of Long COVID Europe HungaryIrelandItalyScotlandSpain

read more
Cyprus

Cyprus

Long COVID CyprusLong COVID Cyprus Long Covid Cyprus was formed under the Cyprus Federation of Patients’ Associations in April 2022 by patients suffering with long-term COVID19-related symptoms. Long Covid Cyprus currently has more than 500 members, an active online...

read more
France

France

Long COVID FranceWebsiteapresj20.fr Support groupfacebook.com/ApresJ20 Twittertwitter.com/apresj20 Contactassociation@apresj20.frHighlights Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter....

read more
Germany

Germany

Long COVID GermanyWebsitelongcoviddeutschland.org Support groupLong COVID Deutschland Selbsthilfegruppe Twittertwitter.com/longdeutschland Contactinfo@longcoviddeutschland.orgHighlights 1. Participation in public hearings of the Committee on Health in the German...

read more
Greece

Greece

Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...

read more
Netherlands

Netherlands

Long COVID NetherlandsWebsitehttps://longcovidnederland.wordpress.com/ Patient Support group Long COVID Nederland (PASC) - langdurige corona klachten | Facebook  1) The 6th of July we handed over our petition, signed by more than 12.000 people, to members of the Dutch...

read more
Sweden

Sweden

Long COVID SwedenWebsitehttps://longcovidsweden.wixsite.com/my-site-1 Facebook: www.facebook.com/groups/711295843056025/ https://www.facebook.com/groups/304035760933732?locale=sv_SE Contactlongcovidsweden@gmail.comHighlights In early 2020 we were hit by the first...

read more
Switzerland

Switzerland

Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...

read more
UK

UK

Long COVID UKLong COVID Support Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and...

read more

Hungary

Ireland

Italy

Scotland

Spain