Long COVID Germany

Highlights

1. Participation in public hearings of the Committee on Health in the German Parliament on issues pertaining to Long COVID on 7 and 24 June 2021.

2. Advisory role during sessions of the inter-ministerial working group on Long COVID hosted by the Federal Ministry of Health in June and August 2021.

3. More than 50.000 signatories to petition calling on the federal government to ramp up financial support for awareness, clinical care, and research into disease mechanisms.

4. Collaboration on the first targeted Long COVID guideline for patients and carers. 

Other members of Long COVID Europe

Austria

Austria

Long COVID AustriaLong COVID Austria Long Covid Austria was founded at the end of January 2021. It quickly grew from a Facebook Patient Support Group into a Patient Advocacy Initiative, actively pushing the press to address the issue and increase visibility. We...

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Belgium

Belgium

Long COVID BelgiumPlease choose your region: Flanders WalloniaOther members of Long COVID Europe HungaryIrelandItalyScotlandSpain

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Cyprus

Cyprus

Long COVID CyprusLong COVID Cyprus Long Covid Cyprus was formed under the Cyprus Federation of Patients’ Associations in April 2022 by patients suffering with long-term COVID19-related symptoms. Long Covid Cyprus currently has more than 500 members, an active online...

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France

France

Long COVID FranceWebsiteapresj20.fr Support groupfacebook.com/ApresJ20 Twittertwitter.com/apresj20 Contactassociation@apresj20.frHighlights Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter....

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Greece

Greece

Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...

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Netherlands

Netherlands

Long COVID NetherlandsWebsitehttps://longcovidnederland.wordpress.com/ Patient Support group Long COVID Nederland (PASC) - langdurige corona klachten | Facebook  1) The 6th of July we handed over our petition, signed by more than 12.000 people, to members of the Dutch...

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Sweden

Sweden

Long COVID SwedenWebsitehttps://longcovidsweden.wixsite.com/my-site-1 Facebook: www.facebook.com/groups/711295843056025/ https://www.facebook.com/groups/304035760933732?locale=sv_SE Contactlongcovidsweden@gmail.comHighlights In early 2020 we were hit by the first...

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Switzerland

Switzerland

Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...

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UK

UK

Long COVID UKLong COVID Support Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and...

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Hungary

Ireland

Italy

Scotland

Spain