Long COVID Sweden


In early 2020 we were hit by the first wave. Very many were infected by the virus, but what no one knew then, was that very many of us would not fully recover.

When the state of knowledge was at its lowest, several groups opened up on Facebook. Groups where many sought help from each other when the the health service ”closed the door” on us because we could still breathe.

It was in the groups that all non-profit work started to push for the right to examinations, symptom treatment, rehabilitation and recognition.

The virus has caused a variety of symptoms that affect different parts of the body. These long-lasting and persistent symptoms affect the quality of life, ability to work and attendance at school.

We need help and we needed it yesterday!


  1. Royal Academy of Sciences Sub-report 2021-04-27: Post-acute Covid-19 syndrome – long-term complications of Covid-19

”Given the knowledge gap that exists around prolonged symptoms after Covid-19 infection is required a lot of research in a very large number of areas. In the short term, we need a better way

be able to estimate the size of the problem in society. Questions to shed light on immediately are: How come some individuals develop prolonged symptoms? What processes are involved

in curing SARS-CoV-2 infections? What are the disease mechanisms of these symptoms? How do the current symptoms affect the sufferer from a broad perspective?”


  1. SBU – Statens beredning för medicinsk och social utvärdering

The goal of the project was to prioritize the ten most important research issues regarding long-term symptoms of covid-19. The participants came from User Associations, Facebook groups Research nodes Authorities and Professional Associations


  1. Socialstyrelsen

Postcovid – support for staff and decision-makers in health   https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2021-3-7276.pdf



  1. Jonas F Ludvigsson professor vid Institutionen för medicinsk epidemiologi och biostatistik provides an overview of the scientific literature on long covid in children.


  1. Barnombudsmannens rapport –

Consequences of the Covid-19 pandemic for children Final report of government assignments, 2021-06-30, Dnr 2020-0218



Other members of Long COVID Europe