Long COVID Netherlands

Website
https://longcovidnederland.wordpress.com/

Patient Support group

Long COVID Nederland (PASC) – langdurige corona klachten | Facebook

1) The 6th of July we handed over our petition, signed by more than 12.000 people, to members of the Dutch House of representatives, which led to motions by multiple politicians and a response from the Minister of Public Health, Welfare and Sports, including €7,8 million in extra funding for Long Covid research.

Brief aan de Tweede Kamer – Long Covid Nederland (wordpress.com)

Uitgebreide toelichting – Long Covid Nederland (wordpress.com)

Blog – Long Covid Nederland (wordpress.com)

2) We started a patient support group on Facebook with more than 2.500 members and provide information about Long Covid through various (social) media channels.

Long COVID Nederland (PASC) – langdurige corona klachten | Facebook

(8) Petitie Long C o v i d Nederland PASC | Facebook

(3) Petitie Long COVID Nederland (PASC): Company Page Admin | LinkedIn

Long COVID Nederland (PASC) (@longcovidnederland) • Instagram photos and videos

Long COVID Netherlands (PASC) 🟠 (@LongCovidNL) / Twitter

3) We are advising and providing patient perspectives on Long COVID research studies and contributing to WHO EU on the topic of Long Covid education.

Other members of Long COVID Europe

Sweden

Long COVID SwedenWebsitehttps://longcovidsweden.wixsite.com/my-site-1 Facebook: www.facebook.com/groups/711295843056025/ https://www.facebook.com/groups/304035760933732?locale=sv_SE Contactlongcovidsweden@gmail.comHighlights In early 2020 we were hit by the first...

Austria

Long COVID AustriaLong COVID Austria Long Covid Austria was founded at the end of January 2021. It quickly grew from a Facebook Patient Support Group into a Patient Advocacy Initiative, actively pushing the press to address the issue and increase visibility. We...

Belgium (Wallonia)

Long COVID Belgium (Wallonia) Covid long, nous existons Belgique In the Wallonia part of Belgium, the patient association ‘Covid long, nous existons Belgique’, together with the Flemisch counterpart, fights for the rights of the long-term Covid sufferers in...

France

Long COVID FranceWebsiteapresj20.fr Support groupfacebook.com/ApresJ20 Twittertwitter.com/apresj20 Contactassociation@apresj20.frHighlights Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter....

UK

Long COVID UKLong COVID Support Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and...

Greece

Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...

Belgium (Flanders)

Long COVID Belgium (Flanders)post-COVID gemeenschap In the Flemish part of Belgium, the Flemish patient association ‘post-COVID gemeenschap’, together with the Walloon counterpart, fights for the rights of the long-term Covid sufferers in Belgium.Websitepost-covid.be...

Germany

Long COVID GermanyWebsitelongcoviddeutschland.org Support groupLong COVID Deutschland Selbsthilfegruppe Twittertwitter.com/longdeutschland Contactinfo@longcoviddeutschland.orgHighlights 1. Participation in public hearings of the Committee on Health in the German...

Switzerland

Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...