Long COVID France

Highlights

Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter. Suffering from a long form of the disease, firstly unrecognized and not supported in France, they daily share their stories to alert and inform, to help and support each other.  

The goal of our apolitical, ethical and benevolent Association is to promote and help in the implementation of the 4 objectives set out in the speech of WHO of August 21, 2020, recognizing the #LongCovid disease : Recognition, Care, Communication and Research.


So, the #apresj20 Covid Long France association has been created the 6th of october 2020 at the request of long covid patients and doctors to unite and support patients with persistent Covid-19 symptoms, to inform about Long Covid and to collaborate with researchers and doctors. Our 4 priorities are : 

1)Recognition of Covid Long (adults, children) based on symptoms and not only on tests.
2)Multidisciplinary care in all territories.
3) Communication on Long Covid with the medical profession and the general public.
4) Research involving patients.

Other members of Long COVID Europe

Sweden

Sweden

Long COVID SwedenWebsitehttps://longcovidsweden.wixsite.com/my-site-1 Facebook: www.facebook.com/groups/711295843056025/ https://www.facebook.com/groups/304035760933732?locale=sv_SE Contactlongcovidsweden@gmail.comHighlights In early 2020 we were hit by the first...

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Netherlands

Netherlands

Long COVID NetherlandsWebsitehttps://longcovidnederland.wordpress.com/ Patient Support group Long COVID Nederland (PASC) - langdurige corona klachten | Facebook  1) The 6th of July we handed over our petition, signed by more than 12.000 people, to members of the Dutch...

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Austria

Austria

Long COVID AustriaLong COVID Austria Long Covid Austria was founded at the end of January 2021. It quickly grew from a Facebook Patient Support Group into a Patient Advocacy Initiative, actively pushing the press to address the issue and increase visibility. We...

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Belgium (Wallonia)

Belgium (Wallonia)

Long COVID Belgium (Wallonia) Covid long, nous existons Belgique In the Wallonia part of Belgium, the patient association ‘Covid long, nous existons Belgique’, together with the Flemisch counterpart, fights for the rights of the long-term Covid sufferers in...

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UK

UK

Long COVID UKLong COVID Support Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and...

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Greece

Greece

Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...

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Belgium (Flanders)

Belgium (Flanders)

Long COVID Belgium (Flanders)post-COVID gemeenschap In the Flemish part of Belgium, the Flemish patient association ‘post-COVID gemeenschap’, together with the Walloon counterpart, fights for the rights of the long-term Covid sufferers in Belgium.Websitepost-covid.be...

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Germany

Germany

Long COVID GermanyWebsitelongcoviddeutschland.org Support groupLong COVID Deutschland Selbsthilfegruppe Twittertwitter.com/longdeutschland Contactinfo@longcoviddeutschland.orgHighlights 1. Participation in public hearings of the Committee on Health in the German...

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Switzerland

Switzerland

Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...

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Czechia

Hungary

Ireland

Spain

Italy

France

Scotland

Ukraine

Finland