Long COVID UK

Long COVID Support

Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into t

Our impact

On July 8th 2021, Long Covid Support wrote to Sajid Javid urging that, when evaluating policy, he takes account of the devastating and prolonged impact that Long Covid can have on people of all ages.

Analysis of data from our ongoing survey into patient experience of seeking referral to Long Covid clinics in England, including feedback from our Facebook support group.

Long Covid: is policy reaching patients? 28 February 2021 Whilst there has been some progress to put in place support, particularly in England, this is not yet reaching large numbers of people, many of whom have lived with debilitating symptoms for a year and have seen their ability to work, study or care for others significantly impaired. In this document we set out what people with Long Covid urgently need.

Long Covid Support / Patient Safety Learning Joint Call to Action February 2021
The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach.

On 10th January 2021, Long Covid Support contributed to the All Party Parliamentary Group on Coronavirus evidence sessions on Long Covid.

Letter from Dr Tedros Adhanom Ghebreyesus, Director General of the WHO following his opening of the Long Covid Forum on 9th and 10th January 2021, which Long Covid Support were instrumental in organising.

Other members of Long COVID Europe

Belgium (Wallonia)

Belgium (Wallonia)

Long COVID Belgium (Wallonia) Covid long, nous existons Belgique In the Wallonia part of Belgium, the patient association ‘Covid long, nous existons Belgique’, together with the Flemisch counterpart, fights for the rights of the long-term Covid sufferers in...

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France

France

Long COVID FranceWebsiteapresj20.fr Support groupfacebook.com/ApresJ20 Twittertwitter.com/apresj20 Contactassociation@apresj20.frHighlights Since April 2020, thanks to the hashtag #ApresJ20, patients have gathered in France on social networks, especially on Twitter....

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Greece

Greece

Long COVID GreeceLong COVID Greece Long Covid Greece is a newly founded initiative working towards formation of an organisation and website. It started initially as a Facebook group in March 2021, offering support and information in people and doctors affected by long...

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Belgium (Flanders)

Belgium (Flanders)

Long COVID Belgium (Flanders)post-COVID gemeenschap In the Flemish part of Belgium, the Flemish patient association ‘post-COVID gemeenschap’, together with the Walloon counterpart, fights for the rights of the long-term Covid sufferers in Belgium.Websitepost-covid.be...

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Germany

Germany

Long COVID GermanyWebsitelongcoviddeutschland.org Support groupLong COVID Deutschland Selbsthilfegruppe Twittertwitter.com/longdeutschland Contactinfo@longcoviddeutschland.orgHighlights 1. Participation in public hearings of the Committee on Health in the German...

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Switserland

Switserland

Long COVID SwitzerlandLong COVID Schweiz Long Covid Switzerland is an association officially founded in March 2021 and based in Bern. It has its roots in a Facebook group, started in September 2020, which provides information and support to people affected by Long...

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Austria

Hungary

Czechia

Ireland

Italy

France

Scotland

Sweden

Finland

Spain

The Netherlands

Ukraine